IPA/Genzyme Meeting

Apr 18, 2002 | NEWS

Board members of the IPA, the International Pompe Association, met with key representatives of Genzyme in Cambridge, Massachusetts on April 16-17, 2002.  The IPA members in attendance were: Randall House, AMDA-US; Marylyn House, AMDA-US, Ria Broekgaarden, VSN-The...

Genzyme Press Release

Apr 17, 2002 | NEWS

Excerpt From Genzyme’s April 17, 2002 Press Release Pompe Update Genzyme is moving forward aggressively with its program to develop an effective therapy for Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup...

Letter from Vice President of Genzyme

Mar 5, 2002 | NEWS

Following is a letter sent to the IPA by Jan van Heek, Executive Vice President of Genzyme, for release prior to the VSN Pompe Patient Conference which took place on March 9, 2002. in the Netherlands. Dear Friends, On Saturday, March 9th, 2002, I will be speaking at...

IPA Board Meeting – February 18-19, 2002

Feb 20, 2002 | NEWS

The first official IPA Board Meeting occurred in Rotterdam, The Netherlands on Feb. 18-19, 2002. Future agendas were planned and the following committees were formed. Communications—Kevin O’Donnell, Alan Muir, Marylyn House Patient Organizations—Maryze Schoneveld,...

Letter from IPA Chairman to Pompe Patients

Feb 18, 2002 | NEWS

The International Pompe Association (IPA) board will meet on February 18-19th, 2002. Representatives of scientific/medical teams and Genzyme will attend. The following issues will be discussed: 1. Finalize the universal patient questionnaire to be distributed in the...

Genzyme Acquires Manufacturing Facility in Europe

Oct 4, 2001 | NEWS

October 2001—CAMBRIDGE, Mass.—Genzyme Corporation announced today that it has acquired certain assets of Pharming N.V., the Belgian subsidiary of the Pharming Group currently operating under a court-supervised receivership. These assets include a 70,000 square foot...

2001 Conference

Oct 1, 2001 | CONFERENCES

The first AMDA Patient Conference was held in San Antonio, Texas on September 28-30, 2001. It was attended by approximately 100 participants from around the world. The agenda included presentations from doctors directly involved in current clinical trialsA research...

Genzyme to Acquire Novazyme Pharmaceuticals

Aug 7, 2001 | NEWS

Proprietary Glycoprotein Technology Platform Will Advance Lysosomal Storage Disorder Programs Excerpt from August 7, 2001 Press Release Genzyme Corp. and privately held Novazyme Pharmaceuticals Inc. today announced a definitive merger agreement under which Novazyme...