Webinar Details Title: The Importance of Being Resilient: Finding Hope When Life Gets Hard Date: Tuesday, September 29, 2026 Time: 6 p.m. CT / 7 p.m. ET Moderator:Dwayne Wilson Session Overview:This session focuses on the emotional side of living with Pompe disease:...
Webinar Details Title: Biomarkers of Central Nervous System Involvement in Pompe Disease: New Learnings Date: Thursday, September 24, 2026 Time: 10 a.m. CT / 11 a.m. ET Speaker:Kristen Hagarty-Waite, PhD, RDN, LDN Webinar Overview:Central nervous system (CNS)...
August 7, 2026 Pompe Alliance, Marshall’s Mountain, Grant’s Giants, Pompe Warrior Foundation, Ryan Colburn of the Pompe Community, and the AMDA are working together to help patients obtain clear and timely information regarding reports of Nexviazyme...
Every August, National Immunization Awareness Month (NIAM) puts a spotlight on one of the most effective tools we have to protect our health — vaccines. For the Pompe disease community, that message carries extra weight. Respiratory muscle weakness and impaired cough...
