Aug 30, 2026 | ARCHIVES, NEWS, RESEARCH GRANT
AMDA RESEARCH GRANT PROGRAM Call for Letters of Intent The Acid Maltase Deficiency Association (AMDA) is pleased to announce the opening of the 2026–2027 AMDA Research Grant Program. The AMDA will award one research grant of up to $150,000 to support research that...
Aug 27, 2026 | RESEARCH GRANT
The Acid Maltase Deficiency Association (AMDA) is renaming its research grant program back to the AMDA Research Grant, the name it carried when the program was first established in 2010. The change honors the life and legacy of Tiffany L. House, who passed away on May...
Aug 21, 2026 | UPCOMING TWYPP SESSIONS
Webinar Details Title: The Importance of Being Resilient: Finding Hope When Life Gets Hard Date: Tuesday, September 29, 2026 Time: 6 p.m. CT / 7 p.m. ET Moderator:Dwayne Wilson Session Overview:This session focuses on the emotional side of living with Pompe disease:...
Aug 20, 2026 | UPCOMING WEBINARS, WEBINARS
Webinar Details Title: Biomarkers of Central Nervous System Involvement in Pompe Disease: New Learnings Date: Thursday, September 24, 2026 Time: 10 a.m. CT / 11 a.m. ET Speaker:Kristen Hagarty-Waite, PhD, RDN, LDN Webinar Overview:Central nervous system (CNS)...
Aug 7, 2026 | ARCHIVES, NEWS
August 7, 2026 Pompe Alliance, Marshall’s Mountain, Grant’s Giants, Pompe Warrior Foundation, Ryan Colburn of the Pompe Community, and the AMDA are working together to help patients obtain clear and timely information regarding reports of Nexviazyme...
