By: Tiffany House–AMDA President posted on: March 03, 2017   On February 28, 2017—Rare Disease Day—Pompe disease was once again the...

By: Tiffany House posted on: July 22, 2013 On November 30, 2012 the Pompe Community lost one of its most valued Advocates: Helen Walker. ...

By: --A Late-onset Pompe patient posted on: May 14, 2012 Something to think about…... A cause that is very near and dear to my heart is...

By: Tiffany House--AMDA President posted on: March 01, 2010 The AMDA has nominated Dr. Arnold Reuser and Dr. Ans van der Ploeg to the Rare...

By: Tiffany House--AMDA President posted on: February 15, 2010 What happened to the TRUTH? In the wake of the recent article by Quest...

By Dawn Harris Kendall posted on: December 01, 2009 Living with Pompe Elizabeth Nunnery takes her infant daughter, Zoe, to the hospital at...

By: Jason B. Johnson posted on: July 20, 2009 Published in University of Texas San Antonio’s Sombrilla Magazine: Summer 2009 Tiffany House...

By: IPA posted on: May 08, 2009 Dear IPA Affiliate, You will no doubt have heard the wonderful news that MyozymeA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More from the Belgian...

By: Tiffany House--AMDA President posted on: January 17, 2009 The AMDA is writing to our Pompe patient community to let everyone know that...

By: IPA posted on: January 14, 2009 Since the first market approval of MyozymeA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More, the IPA has liaised directly with Genzyme LSDA group of diseases in which substances build up inside lysosomes because the body cannot break them... More Therapeutics...

By: Mariana Pisano posted on: November 14, 2006 (Published to web on November 14, 2006) Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More, a rare, devastating and often fatal...

By: Marylyn House posted on: September 19, 2006 Dear All, I admit that I was wrong in my previous analysis of “The Cure:” an analysis...

By: Marylyn House posted on: September 02, 2006 (this response was written based on an expert found on Amazon.com and an article in the...

By: A. Dorsett posted on: May 13, 2005 (Originally published May 13, 2005) By doctor’s estimates, Tiffany House shouldn’t be alive today,...

By: By Richard Jerome. Macon Morehouse in San Antonio. posted on: March 21, 2005 Doctors Said Tiffany House Wouldn’t Live Past 20, but Her...

By: Marylyn House posted on: June 03, 2003 Recently, I read an article in The Economist Technology Quarterly, December 14, 2002, entitled...

By: Marylyn House posted on: March 28, 2003 The following correspondence is in response to the Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research article that was...

By: M. Pisano posted on: September 24, 2001 (originally published in San Antonio Express-News on Sept. 24, 2001) When Tiffany House was...