By: July 20, 2009posted on:
Published in University of Texas San Antonio’s Sombrilla Magazine: Summer 2009
Tiffany House was just 11 when she was diagnosed with a rare and often fatal disease called Acid Maltase Deficiency. Doctors told her she wouldn’t live into her 20s.
Now 26, House has been called a medical marvel, bucking her prognosis and leading a full life. She is president of the Acid Maltase Deficiency Association, created in 1995 by her parents, Randall and Marylyn House, to assist in funding research on her disease, often called Pompe disease, and to promote knowledge of Pompe. She is also a board member of the International Pompe Association and is the patient representative to the Food and Drug Administration, fighting to extend treatment possibilities to all patients.
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