International Survey on Pompe Disease and Covid-19

September 19, 2022

Over the last 2 years the COVID-19 pandemic has had wide reaching effects on people all over the world.
To better understand the impact of the Covid 19 Pandemic on the worldwide Pompe community, the
International Pompe Association and the Erasmus MC are undertaking a one-time international survey of
Pompe patients. The purpose of this survey is to look at both the effects of the pandemic on the life-style
of Pompe patients, as well as the effects of infections with COVID-19. We believe that it is critical to
gather this data so that we can properly and timely document these effects and we would like to ask your
help.
This study is open to all Pompe Patients over the age of 16. If you are interested in participating in the
Survey and are in the US, please contact us at info@amda-pompe.org

Covid Survey info

 

OTHER NEWS

International Survey on Pompe Disease and Covid-19

Over the last 2 years the COVID-19 pandemic has had wide reaching effects on people all over the world. To better understand the impact of the Covid 19 Pandemic on the worldwide Pompe community, the International Pompe Association and the Erasmus MC are undertaking a...

read more

2022 PCMA Pull for Pompe Fundraiser

The AMDA is excited to announce that the 11th Annual PCMA’s Pull for Pompe will take place on Saturday, April 30, 2022 at the National Shooting Complex in San Antonio, Texas! The Pull for Pompe clay shooting event is designed for all ages and ability levels. Please...

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 Acid Maltase Deficiency Association

GET INVOLVED

Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:

(210) 494-6144

info@amda-pompe.org

AMDA

PO Box 700248

San Antonio, Texas 78270 USA