It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. – Robert H. Goddard
About AMDA
The Acid Maltase Deficiency Association formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, also known as Pompe’s Disease.
Recently Added
Amicus Therapeutics Announces FDA Approval and Launch of New Treatment for Pompe Disease
PHILADELPHIA, Sept. 28, 2023 (GLOBE...
CALL to participate in IPA Project Every Move Counts
At International Pompe Day the...
2024 Acid Maltase Deficiency Association (AMDA)/International Pompe Association (IPA) Conference date has been set!
Dear Pompe Warriors and Patient...
Rare Artist Contest is now Open for Submissions
Enter July 23rd - August 31st at...
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
PHILADELPHIA, June 27, 2023 (GLOBE...
2023 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that...
WHAT IS POMPE DISEASE?
Pompe disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs. Pompe disease is also known as Acid Maltase Deficiency or Glycogen Storage Disease type II.
RESEARCH
INITIATIVES
NEWS
CONFERENCES
If you are a newly diagnosed patient, please email info@amda-pompe.org and someone will return your message within 24-48 hours.
Get Involved
Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.