It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. – Robert H. Goddard
About AMDA
The Acid Maltase Deficiency Association formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, also known as Pompe’s Disease.
Recently Added
2023 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that...
2022 Helen Walker Research Grant For Pompe Disease Now Accepting Appliations
The AMDA is excited to announce a...
An Open Letter to the Pompe Community
On October 28, Amicus Therapeutics...
International Survey on Pompe Disease and Covid-19
Over the last 2 years the COVID-19...
2021 Helen Walker Grant for Pompe Disease Winner Announcement
The AMDA is excited to announce that...
Astellas Gene Therapies Press Release – Clinical Trial Update
"On June 26, 2022, Astellas Pharma,...
WHAT IS POMPE DISEASE?
Pompe disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs. Pompe disease is also known as Acid Maltase Deficiency or Glycogen Storage Disease type II.
RESEARCH
INITIATIVES
NEWS
CONFERENCES
If you are a newly diagnosed patient, please email info@amda-pompe.org and someone will return your message within 24-48 hours.
Get Involved
Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.