MENTORING PROGRAM
**Discovering that you or a family member has Pompe Disease can be a frightening time. People may become depressed, or have trouble coping with this news. Even after coming to terms with the news, many people may still feel alone–like no one else really understands what they are going through.
Based on feedback received at the 2024 AMDA/IPA Conference, we are revamping our Mentorship Program. Stay tuned for more details.
If you are struggling or just interested in talking to someone, please contact us at support@amda-pompe.org.
We have patients or family members ready and willing to talk to you. You don’t have to feel alone.
Acid Maltase Deficiency Association
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If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:
info@amda-pompe.org
THE AMDA
PO Box 700248
San Antonio, Texas 78270 USA