Discovering that you or a family member has Pompe Disease can be a frightening time. People may become depressed, or have trouble coping with this news. Even after coming to terms with the news, many people may still feel alone–like no one else really understands what they are going through.
In times like these, it helps to talk to someone who’s “been there,” or who is currently going through the same thing.
Therefore, the AMDA works to connect people who want to share their experiences or talk to other patients and/or family members of patients.
If you are interested in talking to someone, or if you want to be involved in our Mentoring/Connecting Program, please contact Marsha Zimmerman at firstname.lastname@example.org
We have patients or family members ready and willing to talk to you. You don’t have to feel alone.