2019 AMDA/IPA Conference Report Available

On October 25-27, 2019, almost 200 Pompe patients and their families, scientists, doctors, and industry representatives from around the world gathered in San Antonio, Texas for the 2019 AMDA/IPA Pompe Patient and Scientific Conference.  Over the course of this weekend, there were twenty-two presentations on topics such as enzyme replacement therapy, gene therapy, muscle regeneration, disease management, and many others.

To download the Conference Brochure, which includes Presenter Biographies and Abstracts, please click here.

An in-depth Conference Report will be available soon.

All presentations are available at the following link: AMDA Conference Videos


 Acid Maltase Deficiency Association


Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:



PO Box 700248

San Antonio, Texas 78270 USA