Dear Pompe Warriors and Patient Community,
We are excited to announce the upcoming 2024 Acid Maltase Deficiency Associate – International Pompe Association (AMDA-IPA) Conference, a momentous event dedicated to advancing knowledge, support, and advocacy for individuals and families affected by Pompe disease. As we gear up to make this conference an empowering experience for all, we cordially invite patients and caregivers to actively participate and shape the content of this significant gathering.
Your unique experiences, insights, and challenges provide a vital perspective that enriches the conference discussions. We sincerely value your contribution and strongly encourage you to propose presentation topics that resonate with your interests, concerns, and aspirations related to Pompe disease.
The conference themes encompass a wide range of subjects pertinent to the Pompe community, including but not limited to:
- Living with Pompe: Personal Stories of Triumph and Resilience
- Advances in Pompe Research and Therapies
- Navigating Healthcare and Access to Treatment
- Support Systems and Building a Strong Patient Community
- Parenting a Child with Pompe: Coping Strategies and Best Practices
- Pompe Awareness and Advocacy: Making a Meaningful Impact
- Overcoming Challenges in Daily Life with Pompe
- Mental Health and Well-being for Patients and Caregivers
- Enhancing Quality of Life through Adaptive Technologies
- Innovations in Pompe Rehabilitation and Physiotherapy
We believe that your experiences can drive the discussions to uncover valuable insights and inspire the entire Pompe community. Whether it’s a personal journey, an innovative coping mechanism, or an unexplored aspect of Pompe disease, your voice matters, and we want to hear it!
If you have a suggestion for a presentation, please reach out to the AMDA by email at info@amda-pompe.org.
Together, we can drive awareness, encourage research, and build a stronger community to tackle the challenges of Pompe disease.
We eagerly await your valuable contributions and look forward to welcoming you to the 2024 AMDA-IPA Conference.