Dec 8, 2019 | CONFERENCES
On October 25-27, 2019, almost 200 Pompe patients and their families, scientists, doctors, and industry representatives from around the world gathered in San Antonio, Texas for the 2019 AMDA/IPA Pompe Patient and Scientific Conference. Over the course of this...
Aug 17, 2019 | CONFERENCES
The AMDA/IPA International Pompe Patient and Scientific Conference will take place in San Antonio, Texas from October 25-27, 2019. Please click here for the 2019 Conference Registration Form. Each family, speaker, patient organization representative, industry...
Aug 22, 2015 | CONFERENCES
For the twentieth (20th) anniversary of the AMDA, we will be hosting an International Patient and Scientific Conference in San Antonio, Texas from October 30, 2015 – November 1, 2015. The Conference will begin on Friday evening (October 30th) with a Welcome...
Jan 15, 2012 | CONFERENCES
On October 7-9, 2011, 150 Pompe patients and their families, scientists, doctors, and industry representatives from around the world gathered in San Antonio, Texas for the 2011 AMDA/IPA Pompe Patient and Scientific Conference. Over the course of this weekend, there...
Nov 24, 2006 | CONFERENCES
2006 AMDA/IPA Conference Report By Allan Muir With contributions from George Fox and Jared Salbato Friday—November 17, 2006 Texas Hoe Down at Sea World Report by George Fox On Friday evening after check in and registration, the AMDA hosted a reception “Hoe Down” at...
Oct 20, 2006 | CONFERENCES
Pompe Workshop Report Allan Muir, Pompe Representative, AGSD(UK) On October the 16th this year we held our annual AGSD (UK) family conference in Milton Keynes. For the Pompe Workshop we had a good number of families present and hopefully I left enough time in and...
Oct 1, 2001 | CONFERENCES
The first AMDA Patient Conference was held in San Antonio, Texas on September 28-30, 2001. It was attended by approximately 100 participants from around the world. The agenda included presentations from doctors directly involved in current clinical trials for Acid...