May 1, 2026 | PAST TWYPP SESSIONS
Webinar Details Title: Let’s Talk Diet — The Real Talk Date: Thursday, May 28, 2026 Moderator:The AMDA staff Webinar Overview:We all know eating well matters, but let’s be honest, actually sticking to a diet is hard. Life gets busy, cravings are real, and...
Mar 25, 2026 | PAST TWYPP SESSIONS
Session Details Title: Home Infusions Date: Wednesday, April 29, 2026 Moderator:Ashley Lloyd, BSN, RN Summary:Home infusions can feel overwhelming at first. Join Ashley Lloyd, BSN, RN, for a practical discussion on how to prepare, what to expect, and ways to make...
Mar 1, 2026 | PAST TWYPP SESSIONS
A Personal Look at the Benefits of Having a Portacath Session Details Title: A Personal Look at the Benefits of Having a Portacath Date: Thursday, March 19, 2026 Moderator:Lucas Garrett Summary:The concept of IV enzyme replacement therapies is not foreign to the Pompe...
Jan 28, 2026 | PAST TWYPP SESSIONS
Session Details Title: Our Adaptations with Pompe Disease Date: Wednesday, February 11, 2026 Moderator:George Fox Session Summary:Living with Pompe disease often means finding new ways to adapt. In this Talking With Your Pompe Peeps (TWYPP) session, George, a dad of...
Dec 27, 2025 | PAST TWYPP SESSIONS
Session Details Title: Infusion Day Playbook: Stories, Tips, and Support Date: Thursday, January 29, 2026 Moderator:Alison Breitbarth, Grant’s Giants Session Summary:Infusions can feel overwhelming at first — and then, over time, they become part of life. In this...
Oct 7, 2025 | PAST TWYPP SESSIONS, TALKING WITH YOUR POMPE PEEPS SESSIONS
Webinar Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2 Date: Wednesday, October 22, 2025 Moderator:Andrea Faris Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you...
Aug 13, 2025 | PAST TWYPP SESSIONS
Session Details Title: Back to School with Pompe: Real Talk for Real Parents Date: Wednesday, August 13, 2025 Moderator: Colleen Sackos Summary:This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school....
Apr 15, 2025 | PAST TWYPP SESSIONS
Session Details Title: The Good, The Bad and The Ugly: How to Approach Unsolicited Advice and Unexpected Actions That Made Your Day Date: Tuesday, April 15, 2025 Moderator:Tiffany House Moderator Biography Tiffany House President, Acid Maltase Deficiency Association;...
Mar 7, 2025 | PAST TWYPP SESSIONS
Session Details Title: Have You Ever Considered Getting a Service Dog? Date: Friday, March 7, 2025 Moderator:Margaret Koehler Summary:Join me for this Talking With Your Pompe Peeps session, where we’ll dive into everything you need to know about Service Dogs! Deciding...
Feb 19, 2025 | PAST TWYPP SESSIONS
Session Details Title: Kaizen Your New Year’s Resolutions: Small Steps, Big Success! Date: Wednesday, February 19, 2025 Moderator:Matt Zimmerman Summary:“A new year, a new you.” Studies show about 80 percent of new year’s resolutions are abandoned by the month of...
