AMDA Webinar Program
The AMDA Webinar Program facilitates the exchange of information between the Pompe patient community and professionals that have expertise in the field.
Upcoming
Webinar
Biomarkers of Central and Musculoskeletal Symptoms in Infantile- and Late-Onset Pompe Disease
Webinar DetailsTitle: BiomarkersA measurable sign in the body that helps track disease progression or treatment response. of Central and Musculoskeletal Symptoms in Infantile- and Late-Onset Pompe DiseaseA form of Pompe disease that begins after infancy and usually progresses more slowly. Date: Tuesday, November 17, 2026 Time: 1 p.m. CT / 2 p.m. ET Speakers:Jaymin Upadhyay, Ph.D.Raquel van Gool, Ph.D. Webinar Overview:In this...
Stronger Together: Mental Health, Grief, and Caregiving in Pompe Disease
Webinar DetailsTitle: Stronger Together: Mental Health, Grief, and Caregiving in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup that damages muscles and can affect breathing and, in some cases, the heart. Date: Monday, November 9, 2026 Time: 1 p.m. CT / 2 p.m. ET Speaker:Kendra J. Bjoraker, Ph.D., L.P. Webinar Overview:Pompe disease is a rare lysosomal storage diseaseA group of diseases in which substances build up inside lysosomes because the body cannot break them down properly., but...
Upcoming Talking With Your Pompe Peeps Session
Check Back Soon for Upcoming Talking With Your Pompe Peep Sessions
We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.
Recording or reposting AMDA webinars or Talking With Your Pompe Peeps Sessions is prohibited without AMDA’s prior express written permission. Unauthorized use may result in takedown demands and legal action.
Video Library
Webinars
Talking With Your Pompe Peeps
AMDA/IPA International Pompe Patient & Scientific Conferences
2024 AMDA Pompe Conference
2019 AMDA Pompe Conference
2015 AMDA Pompe Conference
2011 AMDA Pompe Conference
2006 AMDA Pompe Conference
2001 AMDA Pompe Conference
Acid Maltase Deficiency Association
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If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:
info@amda-pompe.org
THE AMDA
PO Box 700248
San Antonio, Texas 78270 USA