Session Details
Title: Setting Sail with Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup that damages muscles and can affect breathing and, in some cases, the heart.
Date: Friday, August 14, 2026
Time: 1 p.m. CT / 2 p.m. ET
Moderator:
Morgan Burroughs
Session Overview:
Cruising can be one of the most accessible ways to travel with Pompe disease, but planning one takes some know-how. In this session, our moderator shares a firsthand account of cruising with Pompe, walking through how to request and secure accommodations through the cruise line before departure, what the boarding process was like, what it was like leaving the ship for port excursions and how accessibility factored into those experiences, how energy levels and daily routines varied on sea days versus port days, and how food and accessibility held up throughout the ship. Join us for practical tips and real world insight for anyone with Pompe disease considering a cruise.
Note: This discussion is for informational and community support purposes and is not medical advice.
Recording notice: This session will be recorded for internal review and possible educational use. If we share a recording publicly (including YouTube), we will post an edited version focused on general information and community tips, and we will remove participant personal stories and identifying details when possible.
If you prefer not to be recorded, you’re welcome to keep your camera off, change your display name, and/or participate via chat. If you have concerns, please contact us in advance.
Moderator Biography
Morgan Burroughs
Morgan Burroughs brings both lived experience and deep passion to her role as Social Media Coordinator for the AMDA. Diagnosed with Pompe disease at just 21 months old, Morgan has spent her life navigating the challenges of this rare condition—experiences that have fueled her commitment to advocacy and awareness.
A true pioneer in the community, Morgan participated in one of the first clinical trials of Myozyme in 2003, helping pave the way for what would become a life-changing treatment for many. She later transitioned to Lumizyme following its approval. After Hurricane Katrina destroyed the New Orleans hospital where she was receiving care, Morgan relocated to Asheville, North Carolina in 2007, where she continues her journey with resilience and purpose.
Morgan joined the AMDA driven by a desire to ensure that others affected by Pompe disease never feel alone. Through her work, she hopes to amplify patient voices, build community, and make life a little easier for generations to come.