Session Details Title: Campus Ready: Two Perspectives on College Life with Pompe Disease Date: Wednesday, July 29, 2026 Time: 7 p.m. CT / 8 p.m. ET Moderators:Haley HayesMargaret Koehler Session Overview:From campus accessibility and disability services to managing...
Session Details Title: Therapeutic Outlets: How Hospitals Can Reduce Stays and Improve Patients’ Prognosis Date: Wednesday, July 1, 2026 Time: 1 p.m. CT / 2 p.m. ET Moderator:Trevor Hedrich Summary:Because of the interconnected link between mental health and...
Webinar Details Title: Let’s Talk Diet — The Real Talk Date: Thursday, May 28, 2026 Moderator:The AMDA staff Webinar Overview:We all know eating well matters, but let’s be honest, actually sticking to a diet is hard. Life gets busy, cravings are real, and...
Session Details Title: Home Infusions Date: Wednesday, April 29, 2026 Moderator:Ashley Lloyd, BSN, RN Summary:Home infusions can feel overwhelming at first. Join Ashley Lloyd, BSN, RN, for a practical discussion on how to prepare, what to expect, and ways to make...
A Personal Look at the Benefits of Having a Portacath Session Details Title: A Personal Look at the Benefits of Having a Portacath Date: Thursday, March 19, 2026 Moderator:Lucas Garrett Summary:The concept of IV enzyme replacement therapies is not foreign to the Pompe...
Session Details Title: Our Adaptations with Pompe Disease Date: Wednesday, February 11, 2026 Moderator:George Fox Session Summary:Living with Pompe disease often means finding new ways to adapt. In this Talking With Your Pompe Peeps (TWYPP) session, George, a dad of...
Session Details Title: Infusion Day Playbook: Stories, Tips, and Support Date: Thursday, January 29, 2026 Moderator:Alison Breitbarth, Grant’s Giants Session Summary:Infusions can feel overwhelming at first — and then, over time, they become part of life. In this...
Webinar Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2 Date: Wednesday, October 22, 2025 Moderator:Andrea Faris Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you...
We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Guide...
Session Details Title: Back to School with Pompe: Real Talk for Real Parents Date: Wednesday, August 13, 2025 Moderator: Colleen Sackos Summary:This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school....
