May 1, 2026 | UPCOMING TWYPP SESSIONS
Webinar Details Title: Let’s Talk Diet — The Real Talk Date: Thursday, May 28, 2026 Time: 12 p.m. CT / 1 p.m. ET Moderator:The AMDA staff Webinar Overview:We all know eating well matters, but let’s be honest, actually sticking to a diet is hard. Life gets...
Mar 25, 2026 | PAST TWYPP SESSIONS
Session Details Title: Home Infusions Date: Wednesday, April 29, 2026 Moderator:Ashley Lloyd, BSN, RN Summary:Home infusions can feel overwhelming at first. Join Ashley Lloyd, BSN, RN, for a practical discussion on how to prepare, what to expect, and ways to make...
Mar 1, 2026 | PAST TWYPP SESSIONS
A Personal Look at the Benefits of Having a Portacath Session Details Title: A Personal Look at the Benefits of Having a Portacath Date: Thursday, March 19, 2026 Moderator:Lucas Garrett Summary:The concept of IV enzyme replacement therapies is not foreign to the Pompe...
Jan 28, 2026 | PAST TWYPP SESSIONS
Session Details Title: Our Adaptations with Pompe Disease Date: Wednesday, February 11, 2026 Moderator:George Fox Session Summary:Living with Pompe disease often means finding new ways to adapt. In this Talking With Your Pompe Peeps (TWYPP) session, George, a dad of...
Dec 27, 2025 | PAST TWYPP SESSIONS
Session Details Title: Infusion Day Playbook: Stories, Tips, and Support Date: Thursday, January 29, 2026 Moderator:Alison Breitbarth, Grant’s Giants Session Summary:Infusions can feel overwhelming at first — and then, over time, they become part of life. In this...
Oct 7, 2025 | PAST TWYPP SESSIONS, TALKING WITH YOUR POMPE PEEPS SESSIONS
Webinar Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2 Date: Wednesday, October 22, 2025 Moderator:Andrea Faris Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you...
Oct 2, 2025 | UPCOMING TWYPP SESSIONS
We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Guide...
Aug 13, 2025 | PAST TWYPP SESSIONS
Session Details Title: Back to School with Pompe: Real Talk for Real Parents Date: Wednesday, August 13, 2025 Moderator: Colleen Sackos Summary:This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school....
Apr 15, 2025 | PAST TWYPP SESSIONS
Session Details Title: The Good, The Bad and The Ugly: How to Approach Unsolicited Advice and Unexpected Actions That Made Your Day Date: Tuesday, April 15, 2025 Moderator:Tiffany House Moderator Biography Tiffany House President, Acid Maltase Deficiency Association;...
Mar 7, 2025 | PAST TWYPP SESSIONS
Session Details Title: Have You Ever Considered Getting a Service Dog? Date: Friday, March 7, 2025 Moderator:Margaret Koehler Summary:Join me for this Talking With Your Pompe Peeps session, where we’ll dive into everything you need to know about Service Dogs! Deciding...
