Webinar Details
Title: The Importance of Being Resilient: Finding Hope When Life Gets Hard
Date: Tuesday, September 29, 2026
Time: 6 p.m. CT / 7 p.m. ET
Moderator:
Dwayne Wilson
Session Overview:
This session focuses on the emotional side of living with Pompe disease: staying resilient through diagnosis, loss, physical changes, and the everyday challenges that come with a rare, progressive condition, and finding hope even when life feels hardest. Participants are invited to share their own experiences and to hear how others in the community have found strength, purpose, and positivity along the way.
Note: This discussion is for informational and community support purposes and is not medical advice.
Recording notice: This session will be recorded for internal review and possible educational use.
If you prefer not to be recorded, you’re welcome to keep your camera off, change your display name, and/or participate via chat. If you have concerns, please contact us in advance.
Moderator Biography
Dwayne Wilson
Dwayne turned 58 last March. He was diagnosed with late-onset Pompe disease (LOPD) in November 2018, at age 50. He lives in Southern California, in the City of Irvine, with his wife and mother-in-law. Dwayne is a father to four sons; his oldest son passed away from a brain tumor at age 22, about seven months before Dwayne’s diagnosis. He is also a grandfather to two granddaughters, ages three and five, and a grandson born last November. Dwayne’s passion is connecting with others to spread hope and positivity about living with Pompe disease, and to put a smile on people’s faces.
Dwayne is an MDA Ambassador and a writer who wrote the column “On the Road to Pompe” for the Pompe Disease News website. He still works a full-time desk job with Toshiba America Business Solutions and serves as a Pompe Champion with Amicus. Dwayne has been interviewed on three podcasts, and his latest appearance, on The Chronic Truth (Episode 88), has reached over 2,000 downloads across all platforms in less than six weeks. Connect with Dwayne on social media at @smashingpompe.