Session Details Title: Setting Sail with Pompe Disease Date: Friday, August 14, 2026 Moderator:Morgan Burroughs Session Overview:Cruising can be one of the most accessible ways to travel with Pompe disease, but planning one takes some know-how. In this session, our...
Webinar Details Title: What Do Your Pompe Test Results Really Mean? The Evolution of Pompe Diagnostics: The Past, Present, and Future Date: Thursday, August 20, 2026 Speaker:Deeksha Bali, PhD, FACMG Webinar Overview:This webinar examines Pompe disease diagnosis in the...
This month marks the 36th anniversary since the Americans with Disabilities Act (ADA) was signed into law by President George H.W. Bush. At its core, the civil rights law was enacted to help prevent discrimination that folks with disabilities may face. It is meant to...
