Session Details Title: Therapeutic Outlets: How Hospitals Can Reduce Stays and Improve Patients’ Prognosis Date: Wednesday, July 1, 2026 Time: 1 p.m. CT / 2 p.m. ET Moderator:Trevor Hedrich Summary:Because of the interconnected link between mental health and...
A Heartfelt Thank You to the Krueger Family The Acid Maltase Deficiency Association is deeply grateful to the Krueger family for their remarkable and generous donation to our organization. Their gift is a powerful testament to their compassion for all those affected...
May 2026 The following story was written by Courtney, Rachel’s daughter, and submitted to us to share her mother’s experience. We are grateful for her willingness to give us this window into their family’s journey. While we strive to share accurate...
Webinar Details Title: Mental Health for Pompe Disease: The Importance of Being Understood Date: Thursday, May 14, 2026 Speakers:Heather ShortenNadia Bodkin, Pharm. D., MSJC Muyl Webinar Overview:Living with Pompe disease means navigating far more than the physical...
Webinar Details Title: Let’s Talk Diet — The Real Talk Date: Thursday, May 28, 2026 Moderator:The AMDA staff Webinar Overview:We all know eating well matters, but let’s be honest, actually sticking to a diet is hard. Life gets busy, cravings are real, and...
