Sep 28, 2026 | ARCHIVES, ARTICLES
October — a month that many associate with Halloween, and those in the Northern Hemisphere associate with fall — holds a special cause for celebration in our community. October is National Disability Employment Awareness Month (NDEAM). Starting in 1945, NDEAM began as...
Aug 30, 2026 | ARCHIVES, NEWS, RESEARCH GRANT
AMDA RESEARCH GRANT PROGRAM Call for Letters of Intent The Acid Maltase Deficiency Association (AMDA) is pleased to announce the opening of the 2026–2027 AMDA Research Grant Program. The AMDA will award one research grant of up to $150,000 to support research that...
Aug 7, 2026 | ARCHIVES, NEWS
August 7, 2026 Pompe Alliance, Marshall’s Mountain, Grant’s Giants, Pompe Warrior Foundation, Ryan Colburn of the Pompe Community, and the AMDA are working together to help patients obtain clear and timely information regarding reports of Nexviazyme...
Aug 4, 2026 | ARCHIVES, ARTICLES
Every August, National Immunization Awareness Month (NIAM) puts a spotlight on one of the most effective tools we have to protect our health — vaccines. For the Pompe disease community, that message carries extra weight. Respiratory muscle weakness and impaired cough...
Jul 2, 2026 | ARCHIVES, ARTICLES
This month marks the 36th anniversary since the Americans with Disabilities Act (ADA) was signed into law by President George H.W. Bush. At its core, the civil rights law was enacted to help prevent discrimination that folks with disabilities may face. It is meant to...
May 30, 2026 | ARCHIVES, NEWS
A Heartfelt Thank You to the Krueger Family The Acid Maltase Deficiency Association is deeply grateful to the Krueger family for their remarkable and generous donation to our organization. Their gift is a powerful testament to their compassion for all those affected...
Apr 2, 2026 | ARCHIVES, ARTICLES
Move How You Can, Rest All You Need Hey, all! Lucas Garrett, here. As we head into April, I wanted to take a minute to jot down a few ideas on staying healthy — physically and mentally. As many in the Pompe community may already be keenly aware, well-regulated habits...
Feb 24, 2026 | ARCHIVES, NEWS
Honoring Advocacy: Celebrating Tiffany House and the RareVoice Awards This week is Rare Disease Week, with events and activities taking place worldwide to bring awareness to rare diseases and honor the community. One such event is “Rare Disease Week on Capitol...
Feb 5, 2026 | ARCHIVES, NEWS
We are honored to share this moment recognizing Tiffany House as a recipient of the RareVoice Award for State Advocacy. The award is presented by the EveryLife Foundation For Rare Diseases. This award is given to advocates whose voices have helped shape meaningful...
Feb 4, 2026 | ARCHIVES, NEWS
The AMDA is excited to announce that the 15th Annual PCMA’s Pull for Pompe fundraiser will take place on Saturday, May 2, 2026, from 8 a.m. to 2 p.m. CST at the National Shooting Complex in San Antonio, Texas! The Pull for Pompe clay shooting event is designed...
