By: IPA posted on: May 27, 2019


The IPA has authored an article titled “The role of patient advocacy organizations in shaping medical research: the Pompe model,” and we are excited to announce that it has been accepted for publication.

The article focuses on the Pompe Model, a term describing the long-standing relationship between the patient community, the medical/scientific community, and industry. Over the last 20 years, we have seen that as a united community of patients, family, friends, physicians, scientists, and industry, working together, we have an undeniable strength and we have made, and will continue to make, great strides in learning more about Pompe Disease and in working towards treatments and disease management.

The article is published in the Annals of Translational Medicine, an international, peer-reviewed  journal, and can be found here.