Oct 22, 2026 | UPCOMING WEBINARS
Webinar Details Title: Biomarkers of Central and Musculoskeletal Symptoms in Infantile- and Late-Onset Pompe Disease Date: Tuesday, November 17, 2026 Time: 1 p.m. CT / 2 p.m. ET Speakers:Jaymin Upadhyay, Ph.D.Raquel van Gool, Ph.D. Webinar Overview:In this...
Oct 21, 2026 | UPCOMING WEBINARS
Webinar Details Title: Stronger Together: Mental Health, Grief, and Caregiving in Pompe Disease Date: Monday, November 9, 2026 Time: 1 p.m. CT / 2 p.m. ET Speaker:Kendra J. Bjoraker, Ph.D., L.P. Webinar Overview:Pompe disease is a rare lysosomal storage disease, but...
Aug 20, 2026 | PAST WEBINARS
Webinar Details Title: Biomarkers of Central Nervous System Involvement in Pompe Disease: New Learnings Date: Thursday, September 24, 2026 Speaker:Kristen Hagarty-Waite, PhD, RDN, LDN Webinar Overview:Central nervous system (CNS) manifestations persist in patients...
Jul 31, 2026 | PAST WEBINARS
Webinar Details Title: What Do Your Pompe Test Results Really Mean? The Evolution of Pompe Diagnostics: The Past, Present, and Future Date: Thursday, August 20, 2026 Speaker:Deeksha Bali, PhD, FACMG Webinar Overview:This webinar examines Pompe disease diagnosis in the...
May 5, 2026 | PAST WEBINARS
Webinar Details Title: Mental Health for Pompe Disease: The Importance of Being Understood Date: Thursday, May 14, 2026 Speakers:Heather ShortenNadia Bodkin, Pharm. D., MSJC Muyl Webinar Overview:Living with Pompe disease means navigating far more than the physical...
Mar 30, 2026 | PAST WEBINARS
Webinar Details Title: Immune Responses to AAV Gene Therapy: Challenges and Emerging Solutions Date: Thursday, April 23, 2026 Speaker:Abigail Benkert, MD Webinar Overview:Immune responses to AAV gene therapy remain a major barrier to its access and effectiveness. This...
Jan 28, 2026 | PAST WEBINARS
Webinar Details Title: Making sense of research studies and registries Date: Thursday, February 19, 2026 Speakers:Karmen TrzupekRyan Colburn Webinar Overview:Have you heard about research studies and patient registries for Pompe disease? These studies are a critical...
Dec 31, 2025 | PAST WEBINARS
Webinar Details Title: Grief Happens in Rare Disease: Let’s Talk About it Already Date: Thursday, January 15, 2026 Speaker:Lisa Keefauver, MSW Webinar Overview:Given 100% of us experience loss, multiple times in our lives, means that when we work with humans, we’re...
Oct 1, 2025 | UPCOMING WEBINARS
We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Past AMDA Webinars Overview of Breathing...
Sep 30, 2025 | PAST WEBINARS
Webinar Details Title: Overview of Breathing Muscle Weakness in Neuromuscular Disease (NMD) Date: Thursday, September 25, 2025 Speaker:Andrea Klein Webinar Overview:An introduction to the concepts of breathing and coughing muscle weakness, this presentation highlights...
