Jan 15, 2012 | CONFERENCES
2020AOn October 7-9, 2011, 150 Pompe patients and their families, scientists, doctors, and industry representatives from around the world gathered in San Antonio, Texas for the 2011 AMDA/IPA Pompe Patient and Scientific Conference. Over the course of this weekend,...
Nov 24, 2006 | CONFERENCES
2006 AMDA/IPA Conference Report By Allan Muir With contributions from George Fox and Jared Salbato Friday—November 17, 2006 Texas Hoe Down at Sea World Report by George Fox On Friday evening after check in and registration, the AMDA hosted a reception “Hoe Down” at...
Oct 20, 2006 | CONFERENCES
Pompe Workshop Report Allan Muir, Pompe Representative, AGSD(UK) On October the 16th this year we held our annual AGSD (UK) family conference in Milton Keynes. For the Pompe Workshop we had a good number of families present and hopefully I left enough time in and...
Oct 1, 2001 | CONFERENCES
The first AMDA Patient Conference was held in San Antonio, Texas on September 28-30, 2001. It was attended by approximately 100 participants from around the world. The agenda included presentations from doctors directly involved in current clinical trials for Acid...
