Summary of 2004 International Pompe Association Conference

Oct 12, 2004 | NEWS

On 9th and 10th October, the AGSD (UK) held its annual patient conference. This year we were more ambitious than usual in that the Pompe Workshop extended into a second day. Families and speakers arrived on the Friday night and we held an informal conference dinner on...

IPA Conference – October 30 – November 1, 2003

Nov 3, 2003 | NEWS

Medical experts and patients are invited to attend the International Pompe Conference 2003. The goal of the conference is to bring together scientific expertise and patients’ experience. On the way towards a therapy for Pompe’s Disease there were and are many examples...

Genzyme Begins Enrolling Patients in Pivotal Pompe Disease Study

May 29, 2003 | NEWS

Genzyme General (Nasdaq: GENZ), a division of Genzyme Corp., announced today that it has treated the first patient in a pivotal clinical trialA research study that tests new treatments or approaches in people. More evaluating the use of its MyozymeTM recombinant human...

Editorial: Response to March 2003 Article in Quest

Mar 28, 2003 | EDITORIALS

By: Marylyn House posted on: March 28, 2003 The following correspondence is in response to the Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research article that was published in the March...

Genzyme General Begins Enrolling Patients in Pompe Disease Study

Mar 20, 2003 | NEWS

CAMBRIDGE, Mass – Genzyme General (Nasdaq: GENZ), a division of Genzyme Corp., announced today that it has begun enrolment in a clinical trialA research study that tests new treatments or approaches in people. More evaluating the use of its Myozyme™  recombinant human...

Genzyme’s Pompe Program Update

Dec 2, 2002 | NEWS

An update by Genzyme regarding treatment for Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More. Q: What is the status of the Pompe program? Genzyme has made strong progress within its Pompe...

IPA/Genzyme News—September 24, 2002

Oct 2, 2002 | NEWS

IBaarn, October 2nd 2002 Dear IPA members, Herewith I would like to inform you about the IPA/Genzyme telephone conference of September 24 2002. We discussed issues concerning the production, the transition, new trials and the meeting with the Erasmus University, VSN,...

Transgenic Enzyme Production to Cease

Jul 4, 2002 | NEWS

In July 2002, Genzyme began the transition of the nine transgenic (rabbit derived enzymeA protein that helps the body carry out chemical reactions. More) patients to the CHO derived product. Three of the nine patients (infantile patients in the Netherlands) will...