IPA Conference – October 30 – November 1, 2003

Medical experts and patients are invited to attend the International Pompe Conference 2003. The goal of the conference is to bring together scientific expertise and patients’ experience. On the way towards a therapy for Pompe’s Disease there were and are many examples...

Genzyme Begins Enrolling Patients in Pivotal Pompe Disease Study

Genzyme General (Nasdaq: GENZ), a division of Genzyme Corp., announced today that it has treated the first patient in a pivotal clinical trialA research study that tests new treatments or approaches in people. More evaluating the use of its MyozymeTM recombinant human...

Editorial: Response to March 2003 Article in Quest

By: Marylyn House posted on: March 28, 2003 The following correspondence is in response to the Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research article that was published in the March...

Genzyme General Begins Enrolling Patients in Pompe Disease Study

CAMBRIDGE, Mass – Genzyme General (Nasdaq: GENZ), a division of Genzyme Corp., announced today that it has begun enrolment in a clinical trialA research study that tests new treatments or approaches in people. More evaluating the use of its Myozyme™  recombinant human...

Genzyme’s Pompe Program Update

An update by Genzyme regarding treatment for Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More. Q: What is the status of the Pompe program? Genzyme has made strong progress within its Pompe...

IPA/Genzyme News—September 24, 2002

IBaarn, October 2nd 2002 Dear IPA members, Herewith I would like to inform you about the IPA/Genzyme telephone conference of September 24 2002. We discussed issues concerning the production, the transition, new trials and the meeting with the Erasmus University, VSN,...

Transgenic Enzyme Production to Cease

In July 2002, Genzyme began the transition of the nine transgenic (rabbit derived enzymeA protein that helps the body carry out chemical reactions. More) patients to the CHO derived product. Three of the nine patients (infantile patients in the Netherlands) will...

IPA/Genzyme Meeting

Board members of the IPA, the International Pompe Association, met with key representatives of Genzyme in Cambridge, Massachusetts on April 16-17, 2002.  The IPA members in attendance were: Randall House, AMDA-US; Marylyn House, AMDA-US, Ria Broekgaarden, VSN-The...

Genzyme Press Release

Excerpt From Genzyme’s April 17, 2002 Press Release Pompe Update Genzyme is moving forward aggressively with its program to develop an effective therapy for Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup...