2013 Helen Walker Research Grant Awarded

Jan 1, 2014 | NEWS

The fourth annual AMDA Research Grant (named the 2013 Helen Walker Research Grant) was awarded to Dr. Barbara Smith with the University of Florida for her Project: “[Diaphragmatic] Pacing in Subjects with Pompe DiseaseA rare genetic disease in which the body cannot...

2013 Helen Walker Research Grant Applications

Jul 22, 2013 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research. This grant opportunity was made possible...

In Memoriam: Helen Walker

Jul 22, 2013 | EDITORIALS

By: Tiffany House posted on: July 22, 2013 On November 30, 2012 the Pompe Community lost one of its most valued Advocates: Helen Walker.  Helen was the President of the Australian Pompe Association (APA) and a Board Member of the International Pompe Association.  She...

2013 PCMA of Texas’s Pull for Pompe a HUGE Success!

Jul 1, 2013 | NEWS

On April 20, 2013 the Precast Concrete Manufacturers’ Association of Texas (PCMA of Texas) hosted its Third Annual “Pull for Pompe” fundraiser.  Two hundred (200) shooters and one hundred spectators (100) enjoyed a day of friendly competition and family fun at this...

2013 PCMA of Texas’s Pull for Pompe set for April 20, 2013!

Feb 16, 2013 | NEWS

The PCMA of Texas invites you to enjoy a day of family fun benefitting Acid Maltase Deficiency, also known as Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More.  This event is designed for all...

2012 AMDA Research Grant Awarded

Jan 5, 2013 | NEWS

The AMDA is excited to announce that the 2012 AMDA Research Grant Recipient is Dr. Nuno Raimundo of the University of Goettingen in Germany for his Project: “MitochondriaParts of the cell that produce energy. More and AutophagyThe cell's internal cleanup system that...