News Archives

2016 PCMA of Texas Pull for Pompe!

Jan 7, 2016 | NEWS

The AMDA is excited to announce that the 2016 PCMA of Texas Pull for Pompe will take place on Saturday, April 16 at the National Shooting Complex in San Antonio, Texas! This is the 6th Annual Pull for Pompe hosted by the PCMA of Texas. Since it’s launch in 2011, over...

Amicus Therapeutics Commences Phase 1/2 Study of Novel ERT for Treatment of Pompe Disease

Dec 22, 2015 | NEWS

CRANBURY, N.J., Dec. 22, 2015 (GLOBE NEWSWIRE)—Amicus Therapeutics (Nasdaq:FOLD), a biopharmaceutical company at the forefront of rare and orphan diseases, today announced that its investigational new drug (IND) application, submitted to U.S. Food and Drug...

2015 Helen Walker Research Grant Awarded

Dec 13, 2015 | NEWS

The sixth annual AMDA Research Grant (the 2015 Helen Walker Research Grant) was awarded to Dr. Rosa Puertollano and Dr. Nina Raben for their Project: “CurcuminA natural compound being studied for its potential role in supporting cellular processes.: Can it promote...

2015 AMDA International Pompe Patient and Scientific Conference-Update

Aug 22, 2015 | CONFERENCES

For the twentieth (20th) anniversary of the AMDA, we will be hosting an International Patient and Scientific Conference in San Antonio, Texas from October 30, 2015 – November 1, 2015. The Conference will begin on Friday evening (October 30th) with a Welcome...

2015 Helen Walker Research Grant for Pompe Disease Now Accepting Applications

Jul 21, 2015 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a fundraiser hosted by the Precast Manufacturer’s Association of Texas (PCMA of Texas) on April 18,...

Registration now open for 2015 AMDA International Pompe Patient and Scientific Conference

May 21, 2015 | NEWS

We are excited to announce that Registration is now open for the 2015 AMDA International Pompe Patient and Scientific Conference! The Conference will be held in San Antonio, Texas from October 30-November 1, 2015. In order to assist with Conference planning, we ask...

Genzyme’s Pompe Community Program Update for International Pompe Day

Apr 15, 2015 | NEWS

Please click here to read the press release.

Pompe Program to Air on Lifetime’s Access Health on April 15, 2015

Apr 14, 2015 | NEWS

The AMDA is excited to announce that in collaboration with Genzyme Corporation, AMDA President and IPA Chair, Tiffany House, participated in a segment on Pompe Disease awareness for Access Health on Lifetime Television! This program will air on April 15th, 2015 in...

Pompe Disease to be Added to Recommended Newborn Screening Panel in the United States

Mar 6, 2015 | NEWS

The AMDA is very excited to announce that the U.S. Pompe Community is one step closer to having newborn screening become a reality for Pompe disease! On March 2, 2015, the Secretary of Health and Human Services, Sylvia Burwell, accepted the recommendation to add Pompe...

Date Set for 5th Annual PCMA of Texas’ Pull for Pompe!

Mar 1, 2015 | NEWS

The PCMA of Texas invites you to enjoy a day of family fun benefiting Acid Maltase Deficiency, also known as Pompe Disease. This event is designed for all ages and ability levels. It will be held at the National Shooting Complex in San Antonio, Texas. Please click...

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