News Archives

2015 AMDA International Pompe Patient and Scientific Conference-Update

Aug 22, 2015 | CONFERENCES

For the twentieth (20th) anniversary of the AMDA, we will be hosting an International Patient and Scientific Conference in San Antonio, Texas from October 30, 2015 – November 1, 2015. The Conference will begin on Friday evening (October 30th) with a Welcome...

2015 Helen Walker Research Grant for Pompe Disease Now Accepting Applications

Jul 21, 2015 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research. This grant opportunity was made possible...

Registration now open for 2015 AMDA International Pompe Patient and Scientific Conference

May 21, 2015 | NEWS

We are excited to announce that Registration is now open for the 2015 AMDA International Pompe Patient and Scientific Conference! The Conference will be held in San Antonio, Texas from October 30-November 1, 2015. In order to assist with Conference planning, we ask...

Genzyme’s Pompe Community Program Update for International Pompe Day

Apr 15, 2015 | NEWS

Please click here to read the press release.

Pompe Program to Air on Lifetime’s Access Health on April 15, 2015

Apr 14, 2015 | NEWS

The AMDA is excited to announce that in collaboration with Genzyme Corporation, AMDA President and IPA Chair, Tiffany House, participated in a segment on Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup...

Pompe Disease to be Added to Recommended Newborn Screening Panel in the United States

Mar 6, 2015 | NEWS

The AMDA is very excited to announce that the U.S. Pompe Community is one step closer to having newborn screening become a reality for Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More! On March...

Date Set for 5th Annual PCMA of Texas’ Pull for Pompe!

Mar 1, 2015 | NEWS

The PCMA of Texas invites you to enjoy a day of family fun benefiting Acid Maltase Deficiency, also known as Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More. This event is designed for all ages...

Australian Pompe’s Association Welcomes Approval of Treatment for Young Australians with Pompe

Feb 20, 2015 | NEWS

Press Release by Australian Pompe Association (APA) 17th February 2015 The Australian Pompe’s Association (APA) welcomes the news that the Minister for Health Sussan Ley has approved treatment for young Australians with Pompe diseaseA rare genetic disease in which the...

Second Annual International Pompe Day!

Feb 1, 2015 | NEWS

April 15th, 2015 will mark the Second Annual International Pompe Day! Last year the Pompe Community worked together to raise awareness of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More, and...

Update on Biomarin’s Pompe Clinical Program—January 2015

Jan 6, 2015 | NEWS

BioMarin are pausing further recruitment for their BMN-701 clinical trialA research study that tests new treatments or approaches in people. More and have provided this programme update: January 2015 BioMarin is pleased to update the Pompe patient community on the...

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