Webinar Details Title: The ABCs of Pompe Disease Date: Monday, January 13, 2025 Speaker:Erin Huggins, MS, CGC Webinar Overview:Are you looking for information on Pompe disease or trying to navigate a new diagnosis? Overwhelmed by the amount of information online and...
On Saturday, April 27, 2024, the PCMA (Precast Concrete Manufacturers Association) held it’s annual Pull for Pompe fundraiser at the National Shooting Complex in San Antonio, TX. The Pull for Pompe clay shooting event was a day of family fun designed for all ages and...
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by the 2024 Pull for Pompe, a private fundraiser held by the Precast Manufacturer’s Association of Texas...
We would like that thank you all for helping to make our 2024 AMDA/IPA Conference a HUGE success! With upwards of 225 in person attendees, and 80+ virtual attendees from over 13 countries, this was our largest, most successful conference yet! The conference recordings...
May 5, 2024: Day 3 – Conference Photos The final day of the 2024 AMDA/IPA International Pompe Patient & Scientific Conference brought more presentations from industry and a look at the future of Pompe disease treatments and initiatives. It was incredible...
May 4, 2024: Day 2 – Conference Photos: Part 1 Day 2 was a full day of sessions where we saw excellent presentations from researchers, doctors, and patients. Previous Post: Day 1 – Welcome Dinner & Rodeo: Part 2 Next Post: Day 2 – Conference...
May 4, 2024: Day 2 – Conference Photos: Part 2 Previous Post: Day 2 – Conference Photos: Part 1 Next Post: Day 3 – Conference Photos Other Albums Day 1 – Conference Photos Day 1 – Welcome Dinner & Rodeo: Part 1 Day 1 – Welcome...
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 2 Previous Post: Day 1 – Welcome Dinner & Rodeo: Part 1 Next Post: Day 2 – Conference Photos: Part 1 Other Albums Day 1 – Conference Photos Day 1 – Welcome Dinner & Rodeo:...
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 1 After the workshops, everyone was chartered over to Pedrotti’s Ranch for the Welcome Dinner and a good old fashioned Texas Rodeo!!! Previous Post: Day 1 – Conference Photos Next Post: Day 1...
May 3, 2024 – Day 1 – Conference Photos On May 3, 2024, patients, their family members, care givers, researchers, and doctors gathered at the Holiday Inn – Riverwalk for the 2024 AMDA/IPA International Pompe Patient & Scientific Conference. Day 1...
