Jan 13, 2025 | PAST WEBINARS
Webinar Details Title: The ABCs of Pompe Disease Date: Monday, January 13, 2025 Speaker:Erin Huggins, MS, CGC Webinar Overview:Are you looking for information on Pompe disease or trying to navigate a new diagnosis? Overwhelmed by the amount of information online and...
Dec 29, 2024 | ARCHIVES, NEWS
On Saturday, April 27, 2024, the PCMA (Precast Concrete Manufacturers Association) held it’s annual Pull for Pompe fundraiser at the National Shooting Complex in San Antonio, TX. The Pull for Pompe clay shooting event was a day of family fun designed for all ages and...
Dec 28, 2024 | ARCHIVES, NEWS
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research. This grant opportunity was made possible...
Dec 26, 2024 | ARCHIVES, CONFERENCES
We would like that thank you all for helping to make our 2024 AMDA/IPA Conference a HUGE success! With upwards of 225 in person attendees, and 80+ virtual attendees from over 13 countries, this was our largest, most successful conference yet! The conference recordings...
Dec 26, 2024 | CONFERENCES
May 5, 2024: Day 3 – Conference Photos The final day of the 2024 AMDA/IPA International Pompe Patient & Scientific Conference brought more presentations from industry and a look at the future of Pompe diseaseA rare genetic disease in which the body cannot...
Dec 26, 2024 | CONFERENCES
May 4, 2024: Day 2 – Conference Photos: Part 1 Day 2 was a full day of sessions where we saw excellent presentations from researchers, doctors, and patients. Previous Post: Day 1 – Welcome Dinner & Rodeo: Part 2 Next Post: Day 2 – Conference...
Dec 26, 2024 | CONFERENCES
May 4, 2024: Day 2 – Conference Photos: Part 2 Previous Post: Day 2 – Conference Photos: Part 1 Next Post: Day 3 – Conference Photos Other Albums Day 1 – Conference Photos Day 1 – Welcome Dinner & Rodeo: Part 1 Day 1 – Welcome...
Dec 26, 2024 | CONFERENCES
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 2 Previous Post: Day 1 – Welcome Dinner & Rodeo: Part 1 Next Post: Day 2 – Conference Photos: Part 1 Other Albums Day 1 – Conference Photos Day 1 – Welcome Dinner & Rodeo:...
Dec 26, 2024 | CONFERENCES
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 1 After the workshops, everyone was chartered over to Pedrotti’s Ranch for the Welcome Dinner and a good old fashioned Texas Rodeo!!! Previous Post: Day 1 – Conference Photos Next Post: Day 1...
Dec 24, 2024 | CONFERENCES
May 3, 2024 – Day 1 – Conference Photos On May 3, 2024, patients, their family members, care givers, researchers, and doctors gathered at the Holiday Inn – Riverwalk for the 2024 AMDA/IPA International Pompe Patient & Scientific Conference. Day 1...
