2010 AMDA Research Grant Awarded to Dr. Andrea Amalfitano

Jan 1, 2011 | NEWS

In 2010 the AMDA solicited grant applications from researchers around the world.  After careful consideration and consultation with our Scientific Advisory Board, Dr. Amalfitano of Michigan State University was selected as the recipient of the First Annual AMDA...
Autophagy and its Role in Pompe Disease

Autophagy and its Role in Pompe Disease

Aug 4, 2010 | PAST WEBINARS

Webinar Details Title: Autophagy and it’s Role in Pompe Disease Date: Wednesday, August 4, 2010 Speaker:Nina Raben, MD, PhD – Staff Scientist, Arthritis + Rheumatism Branch, National Institute of Arthritis + Musculoskeletal + Skin Diseases (NIAMS), National Institutes...

Pompe Patient Meeting Hosted by Columbia University

Jun 14, 2010 | NEWS

Dr. Maryam Banikazemi of Columbia University is hosting a meeting for Pompe patients on July 16, 2010 in New York, New York. The expert panel of speakers will include Drs. J. Bach, A. Slonim, T. Goldberg, and M. Banikazemi. For more details, please download meeting...

Pompe Program Update—FDA Approves Lumizyme

May 27, 2010 | NEWS

On May 24, 2010 the FDA approved Genzyme’s LumizymeA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More for the treatment of patients with Pompe diseaseA rare genetic disease in which the body cannot properly...

The FDA Approves Lumizyme for Late-Onset Pompe Disease

May 26, 2010 | NEWS

CAMBRIDGE, Mass. – Genzyme Corporation (Nasdaq: GENZ) announced today that the FDA has granted U.S. marketing approval for LumizymeTM (alglucosidase alfaA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More),...

Pompe Disease: The Real Story

Jan 21, 2010 | NEWS

To read a factual account of the true history of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More, please visit Pompe Disease—The Real...