Support for Proposed Legislation in California Regarding Prior Authorization
Hi All, The AMDA has been working with Pfizer on supporting some proposed legislation in California that is intended to streamline the process to get prior authorization of medication. The proposed Bill is SB 866. This Bill could be taken up by the House and Senate...News August 2010 Pompe Program Update from Genzyme
Genzyme would like to provide an update to the US Pompe community regarding the transition to commercial LumizymeTM (alglucosidase alfa) from the ATAP (Alglucosidase Alfa Temporary Access Program) in the United States. As a reminder, Lumizyme was approved by the US...2011 AMDA Pompe Disease Research Grant Opportunity
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a fundraiser aimed at promoting research into Pompe Disease. If you are interested in this opportunity,...AMDA 2010 Research Grant Opportunity
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a private fundraiser aimed at promoting research into Pompe Disease. If you are interested in this...
Respiratory Muscle Strength Training In Pompe Disease
Webinar Details Title: Respiratory Muscle Strength Training in Pompe Disease Date: Monday, June 6, 2011 Speaker:Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University Speaker...Upcoming Event: Respiratory Muscle Strength Training in Pompe Disease Webinar
On June 6, 2011 the AMDA will host a webinar on Respiratory Muscle Strength Training in Pompe disease at 12:00pm (ET); 11:00am (CT); 10:00am (MT); 9:00am (PT). The Guest Speaker is: Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery,...PCMA of Texas hosting “Pull for Pompe” Fundraiser
PCMA of Texas invites you to enjoy a day of family fun benefitting Acid Maltase Deficiency, also known as Pompe Disease. This event is designed for all ages and ability levels. Proceeds from the event will go to the Acid Maltase Deficiency Association (AMDA). For...Cincinnati Children’s Hospital Study on Speech, Language and Swallowing Problems
Cincinnati Children’s Hospital is conducting a study about the speech, language and swallowing problems in infants and children with Pompe disease. The study involves a survey which can be completed online that asks a variety of questions about the speech, language...