AMDA 2010 Research Grant Opportunity
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a private fundraiser aimed at promoting research into Pompe DiseaseA rare genetic disease in which the...
Respiratory Muscle Strength Training In Pompe Disease
Webinar Details Title: Respiratory Muscle Strength Training in Pompe Disease Date: Monday, June 6, 2011 Speaker:Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University Speaker...Upcoming Event: Respiratory Muscle Strength Training in Pompe Disease Webinar
On June 6, 2011 the AMDA will host a webinar on Respiratory Muscle Strength Training in Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More at 12:00pm (ET); 11:00am (CT); 10:00am (MT); 9:00am (PT)....PCMA of Texas hosting “Pull for Pompe” Fundraiser
PCMA of Texas invites you to enjoy a day of family fun benefitting Acid Maltase Deficiency, also known as Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More. This event is designed for all ages...Cincinnati Children’s Hospital Study on Speech, Language and Swallowing Problems
Cincinnati Children’s Hospital is conducting a study about the speech, language and swallowing problems in infants and children with Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More. The study...