We are honored to share this moment recognizing Tiffany House as a recipient of the RareVoice Award for State Advocacy. The award is presented by the EveryLife Foundation For Rare Diseases.
This award is given to advocates whose voices have helped shape meaningful change at the state level for people living with rare diseases. Tiffany’s work did exactly that: She believed deeply that families affected by Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More deserve to be seen, heard, and supported not just medically, but through thoughtful policy and advocacy that improves real-life outcomes.
Tiffany did not advocate from a distance. She lived this work. Her leadership helped elevate the patient voice in rooms where decisions are made, and her impact continues to guide how we show up for the Pompe community today.
Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More is rare. Support shouldn’t be.
View the 2025 RareVoice Awards Recipients.