Phoenix UPDATE: 2-2-2021

Phoenix UPDATE: 2-2-2021

Aug 4, 2021 | PATIENTS

Phoenix UPDATE: 2-2-2021. Wow! That’s was a long time ago, BUT, Luckily, we are still here! Phoenix is now 18 years old, and while we loved him being able to push his chair around the house he can no longer do that. He actually isn’t really even strong enough to...
PHOENIX’S STORY – (AN INFANTILE-ONSET PATIENT)

PHOENIX’S STORY – (AN INFANTILE-ONSET PATIENT)

Jun 11, 2021 | PATIENTS

Phoenix was born July 18th, 2003. I remember reading his APGAR test and the words of the neonatologist were “strong” however, I couldn’t tell if he was referring to his heart or his muscles. At any rate, he showed no sign of any serious problems other than the fact...