Campus Ready: Two Perspectives on College Life with Pompe Disease

Jun 30, 2026 | UPCOMING TWYPP SESSIONS

Promotional flyer for the 2026 Talking With Your Pompe Peeps webinar series. Text reads: Session 16: Campus Ready: Two Perspectives on College Life with Pompe Disease. Moderated by Haley Hayes and Margaret Koehler. Wednesday, July 29, 2026, 7 p.m. CT / 8 p.m. ET. Open discussion. Share your story. Register at amda-pompe.org. A circular photo shows a young woman with brown hair seated in a power wheelchair outdoors.

Session Details

Title: Campus Ready: Two Perspectives on College Life with Pompe Disease

Date: Wednesday, July 29, 2026

Time: 7 p.m. CT / 8 p.m. ET

Moderators:
Haley Hayes
Margaret Koehler

Session Overview:
From campus accessibility and disability services to managing infusions and enzyme replacement therapy schedules on your own, college life with Pompe disease takes real planning. In this session, two community members share what they wish they had known: one who is preparing to start college, and one who recently graduated. Together they will offer honest reflections, practical tips, and the questions worth asking before you ever set foot on campus, then open the floor for your experiences and questions.

Note: This discussion is for informational and community support purposes and is not medical advice.

Recording notice: This session will be recorded for internal review and possible educational use. If we share a recording publicly (including YouTube), we will post an edited version focused on general information and community tips, and we will remove participant personal stories and identifying details when possible.

If you prefer not to be recorded, you’re welcome to keep your camera off, change your display name, and/or participate via chat. If you have concerns, please contact us in advance.

Promotional flyer for the 2026 Talking With Your Pompe Peeps webinar series. Text reads: Session 16: Campus Ready: Two Perspectives on College Life with Pompe Disease. Moderated by Haley Hayes and Margaret Koehler. Wednesday, July 29, 2026, 7 p.m. CT / 8 p.m. ET. Open discussion. Share your story. Register at amda-pompe.org. A circular photo shows a young woman with brown hair seated in a power wheelchair outdoors.
Promotional flyer for the 2026 Talking With Your Pompe Peeps webinar series. Text reads: Session 16: Campus Ready: Two Perspectives on College Life with Pompe Disease. Moderated by Haley Hayes and Margaret Koehler. Wednesday, July 29, 2026, 7 p.m. CT / 8 p.m. ET. Open discussion. Share your story. Register at amda-pompe.org. A circular photo shows a smiling blonde woman holding a brown fluffy dog.
Register Now!

Moderator Biographies

Haley Hayes, TWYPP Session 16 co-moderator, seated in a power wheelchair on an outdoor path. She has long brown hair and is wearing a teal top, black pants, and a long pendant necklace. A wooden fence and sunlit trees are visible in the background.

Hayley Hayes

Haley Hayes is a 20-year-old from Virginia. She has been living with Pompe Disease since infancy and is passionate about using her journey to educate, encourage, and inspire others. Haley is a college student entering her junior year and will continue her education this fall at Liberty University. Through sharing her personal experiences, Haley advocates for the rare disease and disability communities, raises awareness about Pompe Disease, and encourages others by showing that a diagnosis does not define a person’s potential.

Margaret Koehler, TWYPP Session 16 co-moderator, smiling and holding a brown fluffy dog. She has blonde hair and is wearing a white top.

Margaret Koehler

Margaret Koehler is a graduate of Texas Tech Health Sciences Center School of Nursing and now works as a NICU nurse. Diagnosed with Pompe disease at 18, she successfully completed nursing school while navigating the challenges of college with resilience and determination. Margaret is passionate about caring for others and hopes to use her experiences to encourage and inspire those facing their own obstacles.