A Heartfelt Thank You to Our Community
During this time of profound loss, the outpouring of love, support, and kindness from our community has been truly overwhelming. The passing of our beloved president, Tiffany, has been deeply felt by all of us at the Acid Maltase Deficiency Association (AMDA) and Tiffany’s family, but your messages, tributes, and shared memories have provided comfort and strength in ways words cannot fully capture.
Tiffany dedicated her life to serving individuals affected by Pompe disease and seeing how many lives she touched is a beautiful testament to her enduring legacy. Your expressions of sympathy, whether through kind words, or gestures of support, remind us that we are not alone in carrying forward her mission. From the bottom of our hearts, we thank each and every one of you for standing with us. Your love and encouragement fuel our resolve to continue the work that Tiffany and the House family started—to honor their vision and ensure their impact lives on.
We stand united in our commitment to carrying forward her legacy and mission at the AMDA. While Tiffany’s absence is deeply felt, her vision, passion, and tireless dedication to supporting individuals affected by Pompe disease will continue to guide us.
Under Tiffany’s leadership, the AMDA became a beacon of hope for those impacted by this rare condition, fostering a community of support, advocacy, and education. Her unwavering belief in advancing research, providing resources, and ensuring no patient or family face Pompe disease alone will remain the foundation of everything we do.
Though this is a time of mourning, it is also a time of determination. We pledge to honor Tiffany’s memory by strengthening our efforts, expanding our reach, and pushing forward with the same compassion and resolve that she exemplified. We will continue working to fulfill the AMDA’s mission, ensuring Tiffany’s impact lives on in the lives she touched and the progress we made.
Tiffany’s dream is now ours to carry, and we will uphold it with the same dedication Tiffany instilled in us. With the support of our community, partners, and all those who share Tiffany’s and the House family’s vision, the AMDA will thrive as a testament to her remarkable leadership. Together, we will uphold Tiffany’s legacy, keeping her spirit alive in the community she cherished so deeply.
With gratitude and appreciation,
The House Family
The Acid Maltase Deficiency Association (AMDA)