On Saturday April 5, 2014 the AMDA will host the Fourth Annual Pull for Pompe at the National Shooting Complex in San Antonio, Texas. Over the last three years over $380,000.00 (USD) has been raised through this event and all proceeds go towards the AMDA Research Grant (please see Page 10 for Updates from Prior Grant Recipients). It is a truly family-friendly event, and for a worthy cause.
While the Pompe Community is fortunate to have a treatment, we do not yet have a cure. In addition, there is still a pressing need to better understand the basic science of Pompe disease and to investigate and develop new techniques for disease management. We are making great strides forward, but there is still more research that needs to be done, and it is through fundraisers such as the Pull for Pompe that the necessary money is raised for this important research.