Feb 26, 2025 | PAST WEBINARS
Webinar Details Title: Evolving our understanding of Pompe Disease – data driven insights Date: Wednesday, February 26, 2025 Time: 1 PM CT / 2 PM ET Speaker: Ryan Colburn Webinar Overview:An overview of how NBS enabled significant updates to Pompe epidemiology...
Feb 19, 2025 | PAST TWYPP SESSIONS
Session Details Title: Kaizen Your New Year’s Resolutions: Small Steps, Big Success! Date: Wednesday, February 19, 2025 Time: 12 PM CST / 1 PM EST Moderator:Matt Zimmerman Summary:“A new year, a new you.” Studies show about 80 percent of new year’s resolutions are...
Jan 28, 2025 | ARCHIVES, NEWS
The AMDA is excited to announce that the 14th Annual PCMA’s Pull for Pompe will take place on Saturday, April 26, 2025 at the National Shooting Complex in San Antonio, Texas! The Pull for Pompe clay shooting event is designed for all ages and ability levels....
Jan 14, 2025 | ARCHIVES, NEWS
As we enter a new year, the Acid Maltase Deficiency Association (AMDA) wants to thank you for your unwavering support and dedication. Together, we have navigated through challenges and made significant strides for the Pompe community. Your support fuels our commitment...
Jan 13, 2025 | PAST WEBINARS
Webinar Details Title: The ABCs of Pompe Disease Date: Monday, January 13, 2025 Time: 1 PM CT / 2 PM ET Speaker: Erin Huggins, MS, CGC Webinar Overview:Are you looking for information on Pompe disease or trying to navigate a new diagnosis? Overwhelmed by the amount of...
