Dec 24, 2021 | PATIENTS
December 2021 Hi everyone, my name is Dwayne; I am 53 years old. I was diagnosed with Late Onset Pompe disease (LOPD) in November 2018 when I was 50 years old. I live in Southern California with my wife and mother-in-law. I am a father to four sons. I also have a...
Nov 29, 2021 | PATIENTS
November 2021 My name is Haley Hayes. I am from Virginia. I am 16 years old and was diagnosed with infantile-onset Pompe Disease at 6 months old. I will be sharing my experience being a teenager living with Pompe and how it has affected me over the years. In the...
Oct 14, 2021 | WEBINARS
To watch the Webinar, please click here!
Oct 6, 2021 | PATIENTS
August 2021 My name is Caitlin Naldoza. I am 17 years old and was diagnosed with late onset Pompe Disease at 5 years old. I will be sharing my experience being a teenager living with Pompe and how it has affected me over the years. In middle school, that was when I...
Sep 15, 2021 | NEWS
Hi All, We are excited to announce that the webinar is on for Friday, October, 8, 2021 at 1 PM CST. If you have already registered, you don’t need to do anything. If you have NOT registered yet, it’s not too late! Please click here to register. And,...
