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IPA/Erasmus MC Pompe Survey Update Webinar

IPA/Erasmus MC Pompe Survey Update Webinar

Mar 25, 2025 | PAST WEBINARS

Webinar Details Title: The Pompe Survey: Past Insights and Future Goals Date: Tuesday, March 25, 2025 Time: 11 AM CT / 12 PM ET Speakers:Lauren Dobischok, MScMichelle Kruijshaar, PhD Webinar Overview:Launched in 2002, the IPA/Erasmus MC Pompe Survey collects...
Have You Ever Considered Getting a Service Dog?

Have You Ever Considered Getting a Service Dog?

Mar 7, 2025 | PAST TWYPP SESSIONS

Session Details Title: Have You Ever Considered Getting a Service Dog? Date: Friday, March 7, 2025 Time: 1 PM CST / 2 PM EST Moderator: Margaret Koehler Summary:Join me for this Talking With Your Pompe Peeps session, where we’ll dive into everything you need to know...
Dwayne Update: 3-4-2025

Dwayne Update: 3-4-2025

Mar 4, 2025 | PATIENTS

Updated—March 2025 Hi everyone, my name is Dwayne; I am 57 years old. I was diagnosed with Late Onset Pompe disease (LOPD) in November 2018 when I was 50 years old. I live in Southern California in the City of Irvine with my wife and mother-in-law. I am a father to...