Nov 29, 2025 | ARCHIVES, ARTICLES
Burnout, Creativity, and Rest For me, music can be one of the best things to experience in this world. Whether I am playing it or enjoying a song on repeat from one of my favorite artists, music can scratch an itch that most other things in my life cannot. That being...
Nov 28, 2025 | ARCHIVES, NEWS
At Sanofi’s inaugural Global Rare Impact Awards ceremony held on November 14, 2025, in Vienna, three extraordinary leaders were recognized for their dedication to the rare disease community — including two remarkable advocates deeply connected to the Pompe community....
Oct 31, 2025 | ARCHIVES, ARTICLES
Editor’s NoteIn the early years of Pompe research, access to enzyme replacement therapy (ERT) was extremely limited. Long before FDA approval, a handful of families, physicians, and researchers worked tirelessly to secure treatment for patients diagnosed with...
Oct 7, 2025 | PAST TWYPP SESSIONS, TALKING WITH YOUR POMPE PEEPS SESSIONS
Webinar Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2 Date: Wednesday, October 22, 2025 Time: 1 PM CST / 2 PM EST Moderator:Andrea Faris Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you...
Oct 2, 2025 | UPCOMING TWYPP SESSIONS
We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Guide...
