Respiratory Muscle Strength Training In Pompe Disease

Speaker Biography

Harrison N. Jones, PhD, BRS-S, CCC-SLP

Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University

Harrison N. Jones, PhD, is Associate Professor in the Department of Head and Neck Surgery & Communication Sciences (HNSCS) at the Duke University School of Medicine and a Clinical Speech Pathologist at Duke University Hospital. His clinical background is in speech pathology, and, in this role, he evaluates and treats communication and swallowing disorders in medically complex adults and children. His research interests include speech and swallowing disorders in patients across the lifespan. Much of this work has been conducted in Pompe disease including the first reports detailing speech and swallowing impairments in pediatric survivors of infantile-onset Pompe disease, the presence of tongue abnormalities and swallowing disorders in adults with late-onset Pompe disease, and the use of respiratory muscle training to treat respiratory muscle weakness in these populations. He currently serves as Director for the HNSCS Clinical Research Unit.

She founded Breathe with MD, Inc. in memory of her middle sister, Cheryl Lewis, who died because of inappropriate care for neuromuscular respiratory failure. Andrea has a passion for educating others about breathing muscle weakness and the importance of medical self-advocacy. She developed and implemented Breathe with MD’s “Breathing Muscle Weakness 101” online course, which has enrolled nearly 250 participants in the last two years.

Andrea lives with Intermediate Collagen 6 Congenital Muscular Dystrophy and has used non-invasive ventilation since 2013 and mechanical cough assistance since 2014.