Session Details
Title: Our Adaptations with Pompe Disease
Date: Wednesday, February 11, 2026
Moderator:
George Fox
Session Summary:
Living with Pompe disease often means finding new ways to adapt. In this Talking With Your Pompe Peeps (TWYPP) session, George, a dad of a young adult diagnosed with Pompe disease, facilitates a peer-led conversation about the everyday adaptations families and individuals make to support fuller, more meaningful lives. Participants are invited to share what has worked for them and learn from one another’s experiences.
Note: This discussion is for informational and community support purposes and is not medical advice.