Session Details
Title: Our Adaptations with Pompe Disease
Date: Wednesday, February 11, 2026
Moderator:
George Fox
Session Summary:
Living with Pompe disease often means finding new ways to adapt. In this Talking With Your Pompe Peeps (TWYPP) session, George, a dad of a young adult diagnosed with Pompe disease, facilitates a peer-led conversation about the everyday adaptations families and individuals make to support fuller, more meaningful lives. Participants are invited to share what has worked for them and learn from one another’s experiences.
Note: This discussion is for informational and community support purposes and is not medical advice.
Recording notice: This session will be recorded for internal review and possible educational use. If we share a recording publicly (including YouTube), we will post an edited version focused on general information and community tips, and we will remove participant personal stories and identifying details when possible.
If you prefer not to be recorded, you’re welcome to keep your camera off, change your display name, and/or participate via chat. If you have concerns, please contact us in advance.
