Nov 14, 2006 | EDITORIALS
By: Mariana Pisano posted on: November 14, 2006 (Published to web on November 14, 2006) Pompe disease, a rare, devastating and often fatal genetic disorder, is the subject of a major conference to be held Friday through Sunday at the Holiday Inn Riverwalk. To read...
Oct 20, 2006 | CONFERENCES
Pompe Workshop Report Allan Muir, Pompe Representative, AGSD(UK) On October the 16th this year we held our annual AGSD (UK) family conference in Milton Keynes. For the Pompe Workshop we had a good number of families present and hopefully I left enough time in and...
Sep 19, 2006 | EDITORIALS
By: Marylyn House posted on: September 19, 2006 Dear All, I admit that I was wrong in my previous analysis of “The Cure:” an analysis which was based on summaries and reviews I found at Amazon.com. In fact, I must say that I was unexpectedly surprised while reading...
