Jan 21, 2010 | NEWS
To read a factual account of the true history of Pompe Disease, please visit Pompe Disease—The Real Story.
Jan 20, 2010 | NEWS
The AMDA issued a press release regarding the film, Extraordinary Measures. The press release can be found here. In addition, the AMDA created a one-page fact sheet regarding Pompe disease to help raise awareness of the condition. That fact sheet can be found...
Dec 7, 2009 | NEWS
This information was complied from the information provided on clinicaltrials.gov. To read, please download file by clicking here.
Dec 4, 2009 | NEWS
Genzyme would like to provide an update to the US Pompe community about the status of the Alglucosidase Alfa Temporary Access Program (ATAP) and the application for Lumizyme™ (alglucosidase alfa) approval in the United States. In a press release dated December 3,...
Dec 1, 2009 | EDITORIALS
By Dawn Harris Kendall posted on: December 01, 2009 Living with Pompe Elizabeth Nunnery takes her infant daughter, Zoe, to the hospital at 8:30 in the morning. A nurse verifies Zoe’s medical information and hooks Zoe up to machines monitoring her blood oxygen level,...
