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News August 2010 Pompe Program Update from Genzyme

Aug 10, 2011 | NEWS

Genzyme would like to provide an update to the US Pompe community regarding the transition to commercial LumizymeTM (alglucosidase alfa) from the ATAP (Alglucosidase Alfa Temporary Access Program) in the United States. As a reminder, Lumizyme was approved by the US...

2011 AMDA Pompe Disease Research Grant Opportunity

Jul 12, 2011 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a fundraiser aimed at promoting research into Pompe Disease. If you are interested in this opportunity,...

AMDA 2010 Research Grant Opportunity

Jun 14, 2011 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a private fundraiser aimed at promoting research into Pompe Disease. If you are interested in this...
Respiratory Muscle Strength Training In Pompe Disease

Respiratory Muscle Strength Training In Pompe Disease

Jun 6, 2011 | PAST WEBINARS

Webinar Details Title: Respiratory Muscle Strength Training in Pompe Disease Date: Monday, June 6, 2011 Speaker:Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University Speaker...