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News Dr. Arnold Reuser Decorated by Queen of Netherlands

Sep 4, 2012 | NEWS

On Thursday, August 30, 2012 Dr. Arnold Reuser was decorated as a Knight in the Order of the Netherlands Lion by decree of Queen Beatrix of the Netherlands. The decoration was presented at the conclusion of the “Passion for Pompe” Program at the Arminius Church in...

2012 AMDA Research Grant

Jul 30, 2012 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a fundraiser hosted by the Precast Manufacturer’s Association of Texas (PCMA of Texas) aimed at...

2012 PCMA Pull for Pompe Fundraiser Results

Jul 25, 2012 | NEWS

I am very excited to announce that the 2012 PCMA’s Pull for Pompe was a HUGE success.  The PCMA of Texas (www.pcmatexas.org) raised almost $90,000.00 for Pompe Disease Research through its annual skeet-shooting fundraiser! Please click here for PCMA of Texas’s...

BioMarin Pompe Program Update

May 14, 2012 | NEWS

May 13, 2012—Program Update from BioMarin. For more information about the BioMarin trials please contact Sean McCarthy of BioMarin at: smccarthy@bmrn.com. The AMDA is also available to help answer any questions or concerns.  Please contact Tiffany House or Marsha...