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2013 Helen Walker Research Grant Awarded

Jan 1, 2014 | NEWS

The fourth annual AMDA Research Grant (named the 2013 Helen Walker Research Grant) was awarded to Dr. Barbara Smith with the University of Florida for her Project: “[Diaphragmatic] Pacing in Subjects with Pompe Disease.”  Respiratory insufficiency is a serious, and...

2013 Helen Walker Research Grant Applications

Jul 22, 2013 | NEWS

The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This grant opportunity was made possible by a fundraiser hosted by the Precast Manufacturer’s Association of Texas (PCMA of Texas) on April 20,...

In Memoriam: Helen Walker

Jul 22, 2013 | EDITORIALS

By: Tiffany House posted on: July 22, 2013 On November 30, 2012 the Pompe Community lost one of its most valued Advocates: Helen Walker.  Helen was the President of the Australian Pompe Association (APA) and a Board Member of the International Pompe Association.  She...