Oct 1, 2025 | UPCOMING WEBINARS
We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Past AMDA Webinars Overview of Breathing...
Sep 30, 2025 | PAST WEBINARS
Webinar Details Title: Overview of Breathing Muscle Weakness in Neuromuscular Disease (NMD) Date: Thursday, September 25, 2025 Time: 1 PM CST / 2 PM EST Speaker:Andrea Klein Webinar Overview:An introduction to the concepts of breathing and coughing muscle weakness,...
Sep 28, 2025 | ARCHIVES, NEWS
This past May, our hearts broke twice. Within just two weeks, the Pompe community said goodbye to two extraordinary advocates: Maryze Schoneveld van der Linde with the IPA, and our beloved Tiffany House with AMDA/IPA. These weren’t just losses. They were seismic...
Aug 30, 2025 | ARCHIVES, NEWS
A Milestone for Pompe Families This September September is Newborn Screening Awareness Month, a time to celebrate the programs that ensure every baby has a healthy start. This year, there’s especially good news for families affected by Pompe disease: on August...
Aug 13, 2025 | PAST TWYPP SESSIONS
Session Details Title: Back to School with Pompe: Real Talk for Real Parents Date: Wednesday, August 13, 2025 Time: 9 AM CST / 10 AM EST Moderator: Colleen Sackos Summary:This time of year is a stressful time for every parent, as kids all over the country start...
