Sep 30, 2025 | PAST WEBINARS
Webinar Details Title: Overview of Breathing Muscle Weakness in Neuromuscular Disease (NMD) Date: Thursday, September 25, 2025 Time: 1 PM CST / 2 PM EST Speaker:Andrea Klein Webinar Overview:An introduction to the concepts of breathing and coughing muscle weakness,...
Jan 24, 2012 | PAST WEBINARS
Webinar Details Title: NMR Imaging (MRI) and spectroscopic (NMRS) techniques for diagnosis, follow up and evaluation of Pompe disease Date: Tuesday, January 24, 2012 Speakers:Robert-Yves Carlier, MDPascal Laforêt, MDDavid Orlikowski, MD, PhDClaire Wary, PhD Webinar...
Jun 6, 2011 | PAST WEBINARS
Webinar Details Title: Respiratory Muscle Strength Training in Pompe Disease Date: Monday, June 6, 2011 Speaker:Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University Speaker...
Feb 3, 2011 | PAST WEBINARS
Webinar Details Title: Genzyme’s Next Generation Pompe Treatment: Clinical Development Overview Date: Thursday, February 3, 2011 Speakers:Edward Kaye, MDAlison McVie-Wylie, PhD Speaker Biographies:Dr. Kaye is currently Group V.P. and Therapeutic Area Head in Clinical...
Dec 13, 2010 | PAST WEBINARS
Webinar Details Title: BMN-701: Potentially more effective treatment option for Pompe Date: Monday, December 13, 2010 Speaker: Barbara Wuebbels, BioMarinJon Lebowitz,...
Oct 26, 2010 | PAST WEBINARS
Webinar Details Title: Diaphragm Delivery of Recombinant Adeno-Associated Virus Acid Alpha-Glucosidase (rAAV1-CMV-GAA) Gene Vector in Patients With Pompe Disease Date: Tuesday, October 26, 2010 Speaker:Barry J Byrne, MD, PhD – University of...
Aug 4, 2010 | PAST WEBINARS
Webinar Details Title: Autophagy and it’s Role in Pompe Disease Date: Wednesday, August 4, 2010 Speaker:Nina Raben, MD, PhD – Staff Scientist, Arthritis + Rheumatism Branch, National Institute of Arthritis + Musculoskeletal + Skin Diseases (NIAMS), National Institutes...
