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Lentiviral Gene Therapy for Pompe Disease

Lentiviral Gene Therapy for Pompe Disease

Oct 10, 2023 | PAST WEBINARS

Webinar Details Title: Lentiviral gene therapy for Pompe disease Date: Tuesday, October 10, 2023 Time: 10 AM CT, 11 AM ET Speaker:Dr. Pim Pijnappel, Associate Professor in Cell and Gene Therapy at the Erasmus MC University Medical Center, Rotterdam, the Netherlands...
Spark Therapeutics Webinar: Trial Expectations

Spark Therapeutics Webinar: Trial Expectations

Sep 27, 2023 | PAST WEBINARS

Webinar Details Title: Spark Therapeutics Webinar: Trail Expectations – What to Expect Date: Wednesday, September 27, 2023 Time: 1 PM CT / 2 PM ET Speaker:Jacose Bell Webinar Overview:This presentation, developed by Spark Therapeutics, takes audience members...
How to Manage LOPD Patients Diagnosed Through NBS

How to Manage LOPD Patients Diagnosed Through NBS

Aug 10, 2023 | PAST WEBINARS

Webinar Details Title: New insights into Pompe disease since the advent of NBS Date: Thursday, August 10, 2023 Time: 1 PM CT / 2 PM ET Speakers:Dr. Priya Kishnani, MDErin Huggins, MS, CGC Webinar Overview:An overview of the lessons learned from newborn screening for...
Insurance 101 Webinar

Insurance 101 Webinar

Dec 13, 2022 | PAST WEBINARS

Webinar Details Title: Insurance 101: Learning the Basics Date: Tuesday, December 13, 2022 Time: 1 PM CT / 2 PM ET Speaker:Amy DeStefanis, LCSW, CCM Webinar Overview:Insurance 101 will guide the participants through a discussion of the main types of health insurance...
In Utero ERT Webinar

In Utero ERT Webinar

Sep 16, 2022 | PAST WEBINARS

Webinar Details Title: In Utero Enzyme Replacement Therapy for Lysosomal Storage Diseases Date: Friday, September 16, 2022 Time: 1 PM / 2 PM ET Speaker:Jeniffer L. Cohen, MD, Assistant Professor of Pediatrics at Duke University Webinar Overview:Dr. Cohen will provide...
Aquatic Physical Therapy Webinar

Aquatic Physical Therapy Webinar

Aug 26, 2022 | PAST WEBINARS

Webinar Details Title: Aquatic Exercise: Applications for Pompe Disease Date: August 26, 2022 Time: 1:30 PM CT / 2:30 PM ET Speaker:Dr. Kendra Lucas, PT, DPT, Aquatic Physical Therapist at Kettering Health, Ohio Webinar Overview:The unique properties of water provide...
AMDA Zoom Webinar With Sanofi

AMDA Zoom Webinar With Sanofi

Apr 11, 2022 | PAST WEBINARS

Webinar Details Title: POMPE REGISTRY: 18 YEARS OF LEADERSHIP AND CONTRIBUTIONS Date: Monday, April 11, 2022 Speaker:Joseph Bender, MD, MBA, Global Head of Rare Disease Registries Danielle Dong, ScM, CGC, Global Operations and Advocacy Lead Rare Disease Registries...