Oct 1, 2025 | UPCOMING WEBINARS
We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced. Sign up for our newsletter! Past AMDA Webinars Overview of Breathing...
Sep 30, 2025 | PAST WEBINARS
Webinar Details Title: Overview of Breathing Muscle Weakness in Neuromuscular Disease (NMD) Date: Thursday, September 25, 2025 Time: 1 PM CST / 2 PM EST Speaker:Andrea Klein Webinar Overview:An introduction to the concepts of breathing and coughing muscle weakness,...
Jun 9, 2025 | PAST WEBINARS
Webinar Details Title: The Role of Genetic Counselors on the Pompe Disease Care Team Date: Monday, June 9, 2025 Time: 2 PM CT / 3 PM ET Speaker:Erin Huggins, MS, CGC Webinar Overview:This webinar focuses on a unique type of clinician: the genetic counselor. Genetic...
Apr 15, 2025 | PAST WEBINARS
Session Details Title: The Good, The Bad and The Ugly: How to Approach Unsolicited Advice and Unexpected Actions That Made Your Day Date: Tuesday, April 15, 2025 Time: 12 PM CST / 1 PM EST Moderator: Tiffany House *This session will be recorded and posted on the AMDA...
Mar 25, 2025 | PAST WEBINARS
Webinar Details Title: The Pompe Survey: Past Insights and Future Goals Date: Tuesday, March 25, 2025 Time: 11 AM CT / 12 PM ET Speakers:Lauren Dobischok, MScMichelle Kruijshaar, PhD Webinar Overview:Launched in 2002, the IPA/Erasmus MC Pompe Survey collects...
Feb 26, 2025 | PAST WEBINARS
Webinar Details Title: Evolving our understanding of Pompe Disease – data driven insights Date: Wednesday, February 26, 2025 Time: 1 PM CT / 2 PM ET Speaker: Ryan Colburn Webinar Overview:An overview of how NBS enabled significant updates to Pompe epidemiology...
Jan 13, 2025 | PAST WEBINARS
Webinar Details Title: The ABCs of Pompe Disease Date: Monday, January 13, 2025 Time: 1 PM CT / 2 PM ET Speaker: Erin Huggins, MS, CGC Webinar Overview:Are you looking for information on Pompe disease or trying to navigate a new diagnosis? Overwhelmed by the amount of...
Feb 26, 2024 | PAST WEBINARS
Webinar Details Title: Evaluating gene therapies for Pompe disease – clinical trial goals and assessments Date: Monday, February 26, 2024 Speaker:Jordi Díaz-Manera, MD, PhDChristine S. BrownMark Walzer, PhD Webinar Overview:This Astellas Gene Therapies...
Nov 7, 2023 | PAST WEBINARS
Webinar Details Title: Development of Gene Therapy for Pompe Disease: Recent History Date: Tuesday, November 7, 2023 Time: 1 PM CT / 2 PM ET Speaker: Dr. Dwight Koeberl Webinar Overview:Dr. Koeberl will discuss the rationale for gene therapy for Pompe disease. He will...
Oct 17, 2023 | PAST WEBINARS
Webinar Details Title: Defining Central Nervous System Abnormalities in Infantile and Late-Onset Pompe Disease Patients Date: Tuesday, October 17, 2023 Time: 1 PM CT / 2 PM ET Speakers:Raquel van GoolJaymin Upadhyay Webinar Overview:In this presentation, we will...
