Oct 7, 2025 | PAST TWYPP SESSIONS, TALKING WITH YOUR POMPE PEEPS SESSIONS
Webinar Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2 Date: Wednesday, October 22, 2025 Moderator:Andrea Faris Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you...
Aug 13, 2025 | PAST TWYPP SESSIONS
Session Details Title: Back to School with Pompe: Real Talk for Real Parents Date: Wednesday, August 13, 2025 Moderator: Colleen Sackos Summary:This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school....
Apr 15, 2025 | PAST TWYPP SESSIONS
Session Details Title: The Good, The Bad and The Ugly: How to Approach Unsolicited Advice and Unexpected Actions That Made Your Day Date: Tuesday, April 15, 2025 Moderator:Tiffany House Moderator Biography Tiffany House President, Acid Maltase Deficiency Association;...
Mar 7, 2025 | PAST TWYPP SESSIONS
Session Details Title: Have You Ever Considered Getting a Service Dog? Date: Friday, March 7, 2025 Moderator:Margaret Koehler Summary:Join me for this Talking With Your Pompe Peeps session, where we’ll dive into everything you need to know about Service Dogs! Deciding...
Feb 19, 2025 | PAST TWYPP SESSIONS
Session Details Title: Kaizen Your New Year’s Resolutions: Small Steps, Big Success! Date: Wednesday, February 19, 2025 Moderator:Matt Zimmerman Summary:“A new year, a new you.” Studies show about 80 percent of new year’s resolutions are abandoned by the month of...
Nov 21, 2024 | PAST TWYPP SESSIONS
Session Details Title: The Holidays – How to deal with stressors and fun family traditions Date: Thursday, November 21, 2024 Moderator:Tiffany House Moderator Biography Tiffany House President, Acid Maltase Deficiency Association; Chairman/Board Member, International...
Oct 22, 2024 | PAST TWYPP SESSIONS
Session Details Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Date: Tuesday, October 22, 2024 Moderator:Tiffany House Summary:Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you would...
Sep 24, 2024 | PAST TWYPP SESSIONS
Session Details Title: Balancing Pompe (School, Work & Life): How Do You Balance Yours? Date: Tuesday, September 24, 2024 Moderator:Tiffany House Summary:This Open Forum Discussion will focus on exploring the various ways members of the Pompe community juggle all...
Aug 16, 2024 | PAST TWYPP SESSIONS
Session Details Title: The Elementary School Experience: Building Success for IOPD/LOPD Children Through Collaboration and Partnership! Date: August 16, 2024 Moderator:Colleen Sackos Summary:This presentation will entail how to create partnerships and collaboration...
